‘It’s a wonderful escape’: Disabled artist on painting with her eyes and living with motor neurone disease
- Credit: Archant
“Technology has definitely made my life worth living. I spent my first five years with motor neurone disease (MND) without a computer which was a bleak wilderness.”
Sarah Ezekiel, 54, is a disabled, internationally-recognised artist with two children who uses technology to help paint with her eyes.
She was diagnosed with MND in 2000, at which point her life “completely changed” from being a “full-time mum”.
Sarah, who is unable to move her arms and whose condition is terminal, has used Marie Curie Hospice in Hampstead for therapy and support, helping her to deal with a previous divorce and depression.
She calls the hospice her “second home” and says that she wouldn’t be alive without it.
You may also want to watch:
Through art, Sarah has found the creative expression to “escape”.
Via email, the artist told the Ham&High: “When I’m creating, I’m totally focused on my work and all of my problems disappear, although I worry about my artistic ability and I’m never completely satisfied.
- 1 Primrose Hill candlelight vigil to celebrate life of Nicole Hurley
- 2 'Let's save The Victoria pub in Highgate'
- 3 Tributes paid to Primrose Hill mother-of-four as fundraiser launched
- 4 Man charged with murder of Nicole Hurley in Primrose Hill
- 5 Famous Hampstead Heath love swan Mrs Newbie dies
- 6 'Important for mental health': Royal Free commits to maintaining new gardens
- 7 Met Office warns of flooding risk with heavy rain set to hit London
- 8 Italian sandwich bar set to open in Hampstead phone box
- 9 Guilty: Kentish Town man convicted of murdering Jack Ampadu
- 10 'Feels like a runway': Hampstead residents call for LED lamp post change
“It’s a wonderful escape from my problems and I’m happy that I have somewhere to escape. I’m much more content now.”
At home in Hendon, Sarah uses eye-tracking technology – which tracks her pupils to control the cursor on her computer screen – to create her art.
Sarah’s works have been exhibited in Liverpool, Guernsey and even Qatar, with her most recent display coming last September at the Oxo Tower in South Bank.
When the restrictions of the coronavirus pandemic subside, she hopes to exhibit again.
The 54-year-old year old credits technology for giving her back some agency.
“Since getting an assistive computer I rarely feel lonely,” she said. “I’ve had several relationships and can control my life and some parts of my environment.
“I can open my front door, control my TV, curtains and page my carer. It’s given me back some independence.”
Looking to the future, Sarah calls the worsening of her MND “scary” but she says her children give her strength.
“I consider myself lucky because I’ve survived long enough to bring up my children, who are now 20 and 23. They are the most important thing in my life,” Sarah said.
“Saying that, being severely disabled is really hard and I sometimes think that people with MND who pass away quickly are lucky.
“But I make the most of my life and I’m the artist I always wanted to be, so it’s pretty good.”