Search

Mother with motor neurone disease hails Hampstead hospice lifeline

PUBLISHED: 14:43 07 November 2011

Sarah Ezekiel will visit the Marie Curie hospice in Hampstead with friends on Mitzvah Day.

Sarah Ezekiel will visit the Marie Curie hospice in Hampstead with friends on Mitzvah Day.

Archant

Together with her family and friends, Sarah Ezekiel will be offering her help to Marie Curie in Hampstead on Mitzvah Day (November 20) to say thank you for all the medical support and facilities it has offered her.

FACTBOX: Mitzvah Day events

* North Western Reform Synagogue in Temple Fortune will visit an elderly care home, hold a brunch for refugees and makeover a nursery garden.

* Crouch End Chavurah will clear an urban meadow orchard.

* Golders Green synagogue will make over a room at St Mungos hospice for the homeless.

* Norrice Lea Synagogue in Hampstead Garden Suburb will hold a soup kitchen, make gift bags for hospital wards, decorate plates for a homeless shelter and make calendars for care homes.

* The Jewish Community Centre in Hampstead will make over an outdoor classroom at Gospel Oak School, viist Spring Grove Care Home and dig in to create a World Peace Garden.

* The London Jewish Cultural Centre will hold a tea party for Holocaust survivors and knit cushions for the Olympics.

To find out more visit www.mitzvahday.org.uk

I was diagnosed with motor neurone disease (MND) in April 2000.

I was only 34 and pregnant with my second child. My diagnosis was a complete shock. My symptoms were slurred speech and weakness in my left hand. After giving birth, I started to deteriorate rapidly.

I was blundering around, becoming progressively weaker, without any support. My GP told me that I probably wouldn’t live to see my children grow up. The therapist at my surgery said that she couldn’t help me. Eventually, a friend contacted the MND Association.

I was given an association visitor and she told me about the Marie Curie Hospice in Hampstead. I couldn’t imagine going to a hospice and told her that I wasn’t interested.

Luckily, fate seemed to intervene. I had become painfully thin, couldn’t sleep and was very depressed. My brother made an appointment for me to see a doctor at the hospice. I was too ill to protest.

The doctor was extremely kind and understanding. She suggested that I start attending their day therapy unit, to use the gym and have some massage.

I agreed and before long the hospice became part of my weekly routine. I started to see the medical director, Dr Adrian Tookman. He provided the medical support that I desperately needed.

I use the hospice gym twice a week and have had several alternative therapies. The hospice also offers respite and I’ve spent time as an inpatient there.

There are no specialist centres for MND sufferers – so hospices really do offer a very important service. I think that many people believe that hospices only help cancer sufferers but they do a great deal to help patients with MND too.

MND can make you feel very isolated but the hospice provides an opportunity to get out and meet people. There are also several volunteers kindly helping out so you’re guaranteed to see a friendly face. The staff are generally kind and sensitive.

On November 20, I will be taking a team of 12 friends to the hospice for Mitzvah Day. This is a Jewish-led day of social action.

On Mitzvah Day, around the world, thousands of people take part in hands-on projects, without fundraising, to support charities and to build stronger communities.

The mission of Mitzvah Day is to reduce hardship and poverty, to help our environment and to bring a little hands-on joy.

It is a way for everyone to make their mark regardless of affiliation, wealth, age, sex or nationality.

My team will comprise old and new friends, as well as my daughter and son.

It will be a pleasure to give back something to the wonderful place which has helped me so much.

* Anyone interested in taking part in Mitzvah Day should email hamandhighchallenge@mitzvahday.org.uk

Latest Hampstead & Highgate News Stories

Yesterday, 19:22

A “predatory” man who attacked and attempted to rape a woman at knifepoint in her own home has been jailed.

Yesterday, 18:45

Poet William Blake, perhaps the most famous member of the Druid Order, wrote, “I have conversed with the spiritual sun. I saw him on Primrose Hill.”

Yesterday, 18:03

A schoolboy and teacher are reported to have been injured when an intruder armed with a knife attacked pupils and staff at William Ellis School.

Yesterday, 12:03

This week Varjak Paw author SF Said shares his views on the importance of dedicated children’s librarians.

Yesterday, 10:41

The head of English at St Anthony’s School for Boys is a double champion after wining two gold medals at the European Masters Marathon Championships in Poland.

Yesterday, 09:40

Robbers attacked the post office inside the Sherriff centre in West Hampstead yesterday.

Thu, 17:51

The developer behind plans to restore Hornsey Town Hall has announced the firm tasked with running its arts venue.

London’s policing service is being destroyed and Londoners must come to terms with what is happening.

PROMOTED CONTENT

If you are a pet owner, maybe you can empathise with this familiar tale.

Japanese baby and children’s clothing company Familiar is making their first venture into Europe with a pop up event in Hampstead

Newsletter Sign Up

Sign up to the following newsletters:

Sign up to receive our regular email newsletter

Most read Hampstead & Highgate news

Show Job Lists

Digital Edition

cover

Enjoy the
Hampstead & Highgate Express
e-edition today

Subscribe

Education and Training

cover

Read the
Education and Training
e-edition today

Read Now